Résumé

Researchers have encountered many issues while studying rare illnesses such as lack of information, limited sample sizes, difficulty in diagnosis, and more. However, perhaps the biggest challenge is to recruit a large enough sample size for clinical studies; at the same time, obtaining chronological data for these patients is even more difficult. This has urged us to implement a decentralized crowdsourcing medical data sharing platform to obtain chronological rare data for certain diseases, providing both patients and other stakeholders an easier and more secure way of trading medical data by utilizing blockchain technology. This facilitates the obtention of the most elusive types of health data by dynamically allocating extra financial incentives depending on data scarcity. We also provide a novel framework for medical data cross-validation where the system checks the volunteer reviewer count. The review score depends on the count, and the more the reviewers, the bigger the final score. We also explain how differential privacy is used to protect the privacy of individual medical data while enabling data monetization.

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