Development of a questionnaire to evaluate out-of-home participation for people with dementia

Margot-Cattin, Isabel (Haute école de travail social et de la santé EESP Lausanne, HES-SO) ; Kühne, Nicolas (Haute école de travail social et de la santé EESP Lausanne, HES-SO) ; Kottorp, Anders (Malmö University, Sweden) ; Cutchin, Malcolm (Eugene Applebaum College of Pharmacy and Health Sciences, Wayne State University, Detroit, MI) ; Öhman, Annika (Linköping University, Norrköping, Sweden) ; Nygård, Louise (Karolinska Institutet, Stockholm, Sweden)

Objective. We describe the development of a questionnaire, Participation in Activities and Places Outside Home (ACT–OUT), for older adults with cognitive impairment and align it to people with mild- to moderate-stage dementia. Method. ACT–OUT was developed in a cross-cultural collaboration in combination with three rounds of cognitive interviews in Switzerland with 26 older adults without cognitive impairment and five older adults with dementia. Qualitative data from the interviews were analyzed using a constant comparison approach. Results. The final ACT–OUT Version 1.0 consists of three parts: (1) questions targeting places older adults visit; (2) questions on aspects influencing participation, such as transportation, familiarity, and risk perception; and (3) questions on perception of self. Conclusion. The development of an instrument such as ACT–OUT is more a cyclical than a linear process. This study is a first step toward a more systematic evaluation of out-of-home participation among older adults with and without dementia.


Article Type:
scientifique
Faculty:
Santé
Branch:
Ergothérapie
School:
HETS&Sa | EESP
Institute:
LaReSS - Laboratoire de Recherche Santé-Social de la Haute Ecole de travail social et de la santé EESP Lausanne
Subject(s):
Santé
Date:
2019-01
Pagination:
10 p.
Published in:
The American journal of occupational therapy
Numeration (vol. no.):
2019, vol. 73, no. 1, pp. 1-10
DOI:
ISSN:
0272-9490
External resources:
Appears in Collection:



 Record created 2019-07-02, last modified 2019-07-19

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