Validation of the patient assessment of chronic illness care (PACIC) short form scale in heart transplant recipients : the international corss-sectional bright study

Iglesias, Katia (School of Health Sciences, HES-SO Fribourg) ; De Geest, Sabrina (Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056 Basel, CH, Switzerland ; 3Department of Public Health and Primary Care, Academic Centre for Nursing and Midwifery, KU Leuven, Kapucijnenvoer 35 blok d-box 7001, 3000 Leuven, Belgium) ; Berben, Lut (Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056 Basel, CH, Switzerland) ; Dobbels, Fabienne (Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Basel, CH, Switzerland ; Department of Public Health and Primary Care, Academic Centre for Nursing and Midwifery, KU Leuven, Leuven, Belgium) ; Denhaerynk, Kris (Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Basel, CH, Switzerland) ; Russell, Cynthia L. (School of Nursing and Health Studies, University of Missouri-Kansas City, Kansas City, MO, USA) ; Helmy, Remon (Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Basel, CH, Switzerland) ; Peytremann-Bridevaux, Isabelle (Institute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Basel, CH, Switzerland ; Department of epidemiology and health systems (DESS), Center for Primary Care and Public Health (Unisanté), University of Lausanne, Lausanne, Switzerland)

Background: Transplant recipients are chronically ill patients, who require lifelong follow-up to manage comorbidities and prevent graft loss. This necessitates a system of care that is congruent with the Chronic Care Model. The eleven-item self-report Patient Assessment of Chronic Illness Care (PACIC) scale assesses whether chronic care is congruent with the Chronic Care Model, yet its validity for heart transplant patients has not been tested. Methods: We tested the validity of the English version of the PACIC, and compared the similarity of the internal structure of the PACIC across English-speaking countries (USA, Canada, Australia and United Kingdom) and across six languages (French, German, Dutch, Spanish, Italian and Portuguese). This was done using data from the crosssectional international BRIGHT study that included 1378 heart transplant patients from eleven countries across 4 continents. To test the validity of the instrument, confirmatory factor analyses to check the expected unidimensional internal structure, and relations to other variables, were performed. Results: Main analyses confirmed the validity of the English PACIC version for heart transplant patients. Exploratory analyses across English-speaking countries and languages also confirmed the single factorial dimension, except in Italian and Spanish. Conclusion: This scale could help healthcare providers monitor level of chronic illness management and improve transplantation care.


Keywords:
Article Type:
scientifique
Faculty:
Santé
School:
HEdS-FR
Institute:
Recherche appliquée et développement Santé HEDS-FR
Date:
2020-03
Pagination:
11 p.
Published in:
BMC Health Services Research
Numeration (vol. no.):
2020, vol. 20, article 160
DOI:
ISSN:
1472-6963
Appears in Collection:



 Record created 2020-10-22, last modified 2020-11-30

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