Symptom perception in heart failure : a scoping review on definition, factors and instruments

Santos, Gabrielle Cécile (School of Health Sciences, HES-SO Fribourg ; Institute of Higher Education and Research in Healthcare, University of Lausanne, Lausanne, Switzerland) ; Liljeroos, Maria (Department of Medicine and Health Sciences, Linköping University, Linköping, Sweden ; Centre for Clinical Research Sörmland, Uppsala University, Eskilstuna, Sweden) ; Dwyer, Andrew A. (William F. Connell School of Nursing, Boston College, Chestnut Hill, USA) ; Jaques, Cécile (Medical Library, Research and Education Department, Lausanne University Hospital, Lausanne, Switzerland) ; Girard, Josepha (School of Health Sciences, HES-SO Fribourg) ; Strömberg, Anna (Department of Medicine and Health Sciences, Linköping University, Linköping, Sweden) ; Hullin, Roger (Department of Cardiology, Lausanne University Hospital, Lausanne, Switzerland ; Faculty of Biology and Medicine, University of Lausanne, Lausanne, Switzerland)

Background Symptom perception in heart failure has been identified as crucial for effective self-care that is a modifiable factor related to decreased hospital readmission and improved survival. Aims To review systematically the heart failure symptom perception literature and synthesise knowledge on definition, description, factors and instruments. Methods We conducted a scoping review including studies reporting patient-reported symptom perception in adults with heart failure. Structured searches were conducted in Medline, PubMed, Embase, CINAHL, PsychINFO, Web of Science, Cochrane, JBI and grey literature. Two authors independently reviewed references for eligibility. Data were charted in tables and results narratively summarised. Results The search yielded 3057 references, of which 106 were included. The definition of heart failure symptom perception comprised body listening, monitoring signs, recognising, interpreting and labelling symptoms, and furthermore awareness of and assigning meaning to the change. Symptom monitoring, recognition and interpretation were identified as challenging. Symptom perception facilitators include prior heart failure hospitalisation, heart failure self-care maintenance, symptom perception confidence, illness uncertainty and social support. Barriers include knowledge deficits, symptom clusters and lack of tools/materials. Factors with inconsistent impact on symptom perception include age, sex, education, experiences of living with heart failure, comorbidities, cognitive impairment, depression and symptom progression. One instrument measuring all dimensions of heart failure symptom perception was identified. Conclusion Heart failure symptom perception definition and description have been elucidated. Several factors facilitating or hampering symptom perception are known. Further research is needed to determine a risk profile for poor symptom perception – which can then be taken into consideration when supporting heart failure self-care.

Article Type:
Recherche appliquée et développement Santé HEDS-FR
18 p.
Published in:
European Journal of Cardiovascular Nursing
Numeration (vol. no.):
2020, vol. 19, no. 2, pp 100-117
Appears in Collection:

 Record created 2021-01-21, last modified 2021-02-15

Download fulltext

Rate this document:

Rate this document:
(Not yet reviewed)